My sweet boy, This morning we had some alone time. You peeked around the staircase at 5 am and when you saw me open one eye you smiled and waved. Down you came. Slowly. I’ve often commented how you walk like a little old man most of the time. Cautiously. Studying every step before you take it. I know when it’s you because of the pauses. I can hear you coming. When you got near me I held my hand out to you like I always do and you placed…
Read MoreCooper adores going to his grandparent’s house. He can hardly wait to get there and typically gives me a quick wave when it’s time for me to go. He likes to stay two nights and no more. That’s his max time he will happily be away from home. At grandma’s he gets spoiled rotten and treated like a little prince. There is ice cream and swimming and snuggles and endless episodes of Family Feud. Today he came home. He always struggles transitioning too and from. He wants to be home.…
Read MoreMy Son, I’ve been awake a lot the last 3 weeks and that has given me a lot of time to think. You wouldn’t believe the clarity that comes at 4 am. I’ve decided that when my time is done, and someone is writing up the story of my life, and listing my greatest accomplishments, I want them to list you first. You. The yellow haired boy who made me a mother. The boy who overcame. The boy who persevered. The boy who conquered. The boy who gives the gift…
Read MoreOne of the best things we ever did for our family was join Miracle League Baseball. We met so many amazing kids and families like ours. We got outside. We found people who understood our challenges. We became part of a team. And so much more. Moms and dads always tell me that they don’t think their child will actually play. And my answer is always…that doesn’t matter. It’s so fun just to be apart of something. There is no score. Or pressure. Just lots of cheering. And tonight, during…
Read MoreEvery day lately feels like a sprint. And a marathon. Fast and quick and dragging by at the same time. And yet there are really amazing moments sprinkled throughout. Mixed in with the hard and the exhausting. Just a few minutes ago, the one on the right there smashed the one on the lefts Star Wars Lego set. There was yelling. And ‘I hate having a brother!’ But after they snuggled right here. And earlier, my oldest stole the good iPad from Sawyer. He yelled and screamed when we made…
Read MoreI googled hobbies at 3 AM this morning while nursing my newborn. She refused to sleep and I had time. Then I googled hobbies for moms. Then hobbies near me. Why you ask? I guess I don’t have any. My husband and I had a rather heated conversation the other day about how life is eating us up right now and he let me know I don’t ever leave the house. And I don’t have hobbies. It felt like a jab. It wasn’t supposed to be. He was telling me…
Read MoreHave you watched this film yet? When I heard that they were turning the best-selling book ‘The Reason I Jump’ into a full-length documentary film I was SO excited. For those who haven’t read the book, yet, it was written in 2007 from the perspective of a nonspeaking 13-year-old boy, Naoki Higashida. The book was later translated to English which made it rise in popularity even further! I gave it a read after seeing Jon Stewart mention it when he was the host of The Daily Show. The 82-minute documentary…
Read MoreYoung love, there’s nothing like it. You live in this bubble of hope. You make plans for the future and wonder about what your life together will bring. You dream about where you will live, how many children you will have, what vacations you will take. You look forward to a happy life together. Especially being so young and naive you are not imagining all the heartbreak and loss you will have to go through. It’s a part of life and how you cope and support each other as a couple…
Read MoreI may never be in the stands cheering as my son skates down the ice with the puck. But, I feel the same pride, every time I watch him make progress and acquire skills. My son Stalen is autistic. He was diagnosed when he was 21 months old. He is 6 and non-speaking. Every time he says a new word or tries a new food, it is like the last minute of the third period, the game is tied and he’s on a break away, headed down the ice at…
Read More“Can you tell me why you’re crying?” Andy asked softly, his face wrought with concern. “I’m just upset about Leo’s session this morning,” I began. This particular remote learning session, intensely challenging for my boy, and in turn, for me, as I attempted to navigate the resulting behaviors. “I’ve been thinking about it all day,” I explained..“Wondering what I could have done to prevent his upset, or at least minimize it before it escalated…” Andy listened calmly. Pausing for a moment before responding.. “It’s okay to be upset about this…
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