To the mama who is scared. The one who is carrying something heavy. In her heart. Her mind. And on her shoulders. To the mama who is worried. The one who cannot sleep. To the mama who is crushed. The weight of the exhaustion too much. I understand. You feel alone. You are not. You are here with so many of us. A member of our club. To the mama who doubts herself. Who researches. Who navigates. Who refuses to give up. Refuses to take no for an answer. I…
Read MoreDo you have a ‘too much’ kid? One who has you white knuckling through parenting? I do. Our third born son. The one who never stops talking and asking questions. Who opens every drawer and cabinet. Who jumps off couches and as the parent you watch their life flash before your eyes. The one who demands bandaids for every imaginary owie. And has me pulling my hair out. This kid…when we hear his feet toddling down the still big steps in the morning we say…’and so it begins. He’s awake.’…
Read MoreWhen it comes to Halloween and autism….whew, there is a lot of advice out there. And have you noticed a lot of it is really intense? Like almost intimidating? A lot of it makes me feel like I’m doing something wrong as a parent. Blue buckets. Signs. Saying trick-or-treat. Everyone should get candy. Do this. Not that. What I find the most interesting about all the preachy advice is that the ones giving it aren’t walking with our family on Halloween. They don’t know what works for us and what…
Read MoreSee these two boys? They are brothers. One is 10 and one is 8. They both have birthdays coming up and at least once a day I hear… ‘First Halloween, then Thanksgiving, then Cooper’s birthday and then mine!’ This family loves their birthdays. This photo may look like no big deal and when I snapped it, as the little brother walked his older brother into his first day of school this year, I remember pausing and thinking…this is it. This is what I prayed for. Every day. While driving. In…
Read MoreIndependence….. Today was the start of more “independence” for our son Alex! We live in a more rural area so we don’t have public transportation or taxis. They are unreliable. We have “Rides”…you call and schedule well ahead of time and they come take you where you need to go. So, today we started this service for Alex for his Day-Hab days. He always loved riding the bus so he was actually looking forward to this. He trotted out there like he’d done it a thousand times. Only potential issue…
Read MoreLet me tell you about this boy. He is one of a kind for starters. Which is one of my most favorite things about him. He dances to music no one else can hear with courage and joy. He is more himself than any person I have ever met. Unapologetically. But he also comes with some pretty strict rules. Ones he has created himself. He does not stay up late. Nope. By 9 pm he is in bed every night. He watches the same movies on repeat. And has since…
Read MoreWe’ve gotten pretty good at saying no over the past five years. Turning down things with friends. Things with family. Because sometimes autism is just too much. Sometimes the overstimulation and the repercussions aren’t worth it. But today, Jackson made huge strides. We’re trying to climb out of our comfort zones and learn to live again. Opportunity pops up… Dock diving with Jackson and Max with the dog trainers we’re currently working with through Smokin Guns Working Dog Club . Scuba Steve’s Maligator Swamp opened for business today for local…
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Picture it: It is October 31st. Your neighborhood is alive with the buzz of kids trick-or-treating from house-to-house. You are walking hand-in-hand with your child, who is looking cuter than ever in their over-the-top costume. But instead of excitement as a parent, you feel something quite different: Fear. Anxiety. Worry. Why? Because as a parent of a child with autism, trick-or-treating brings with it much more than fun. It brings with it the need to protect your child at all costs. Protect them from overstimulation. From people who misunderstand their…
Read MoreYou are welcome here. I see so many posts online telling parents how to feel about their child’s diagnosis. Some tell them to only see the positive. To celebrate every part of it. Some shame them for saying they are scared. Or hard. Or that they are worried. Some tell them they are awful parents. Some ridicule them for thinking a certain way. Some act self riotous because they didn’t shed a tear when their child was diagnosed. And they shame anyone who did. I read those posts and they…
Read MoreSome days I want more. Hi there. My name is Kate. I am a mother to four children. I share that because my life is full. Fuller than full. There is very little quiet. There is never a day without laundry. And I get no less than a hundred hugs a day. I am an expert in putting bandaids on owies, blowing on mac and cheese, and finding blankets before bed. Skills I never knew would be so important and vital to life. My first born, Cooper, is ten. He…
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