My Husband. I love him with all my heart. Every fiber of my being. I have loved Him since I was 16 years old. I don’t really know anything else. And to be honest, sometimes I don’t even like him. We don’t see eye to eye on many things. We fight a lot. He doesn’t think the things I think are important matter. At all. And frankly, it irritates me that he can’t pretend to go along. He will humor me, but still, not happily. This was going to be…
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My daughter is twelve and on the autism spectrum. Some of the hardest things for kiddos on the spectrum for my daughter anyway, are lines and noise and too many people. In years past that has been a recipe for disaster. Last night, I took my daughter to Glow with her bestie and mom and it was the first time we were able to walk through due to Covid restrictions over the past couple years. I wasn’t sure what to expect, but last night blew away any expectations I could’ve…
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‘My son had never been invited to a birthday party before. I hope you know how much this means to us.’ Yesterday, we had a birthday party for our son Cooper. And we invited his friends. The kids we have met along the way. The ones who don’t necessarily talk or play sports or fit in the norm. Our kids. The colorful kids. At one point, a mama said to me…’we might not make it into the party room. He might not go.’ My response…‘that’s ok. You never have to…
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6 Things I Never Need To Hear Again As A Mom To A Child With A Disability: 1. Have you tried… For some reason people who have never have had the experience love to tell parents of children with disabilities how to get their kid to sleep, eat, behave, etc. For the record, I’ve tried anything and everything you can think of and some things you probably can’t. 2. My neighbor, sister, second cousin twice removed had _______ and now is a doctor, lawyer, ruler of the world. Excellent. Glad…
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Last night was one of those really special nights. Our family, along with 20 or so other families, spent an evening with Santa. Some kids lined up chairs. Another watched an old 1950’s train docu-series on YouTube. One young man used his speech device to ask Santa for a horse. Another young man wore noise canceling headphones the entire time. Some kids sat near Santa. Some led him around by the hand. Others just waved. One little girl was dressed up in a tutu. Others in Jammie’s. My son wore…
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We met Father Christmas and what a lovely experience it was! As with most things we do it was not easy, nor was it perfect, but it was amazing! Charlie struggled at times, he didn’t understand the walk through to the grotto. He did count the elves and he said hello to the owls but it was quite overwhelming. At times I felt that familiar feeling of being out of control. I wondered if we’d made a mistake and I worried we were ruining the experience for the other family…
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A few weeks ago, my husband and I sat around a table with five educators, and four on zoom, discussing our son’s education. He was starting at a new school. Mid year. The one he was at prior didn’t work out. I will be bold and say he wasn’t wanted there. He wasn’t liked. I could fancy it up and put a bow on it…but, well, why… As we discussed the transition, and it came time for me to talk, I said… “I don’t care about educational goals right now.…
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Christmas is so much. It’s busy, it’s loud, it’s joyful, it’s frustrating, it’s just, a lot. I love it though. I love it for religious reasons, I love being with family, I love yummy treats, and I love presents. I get so caught up in it. I have so many deep seeded memories when it comes to Christmas that I want to recreate them for my kids. I want them to have it all and sometimes I forget to slow down. My son, Jesse is on the autism spectrum and…
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“Silent night, Holy night. All is calm, all is bright…” the familiar, beloved carol that ironically swims around the depths of my mind circa 3am during the holiday season. It is ironic because not all is silent, calm, or bright. Did you know up to 80% of autistic individuals struggle with sleep? For Olivia, it is a lack of sleep that causes the struggle. Since she was 4 months old, Olivia has fled challenges learning to fall and stay asleep. I really do understand the concept that we are all…
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I had the honor of meeting with a doctor a while back. A very important doctor. I was telling him all about my Cooper. What we’ve been through. I started at the beginning. He didn’t sleep. Not ever. Everyone told me it would get better. They said I was exaggerating. Only I knew I wasn’t. I told him it took Cooper six years to sleep through the night. And even today, it’s still a struggle. I told him about the burst ear drums. One after another. How no doctor would…
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