Posts

Aiden, A Story of Costumes and Love

April 17, 2017

I would like to introduce you to Aiden. This little boy is one of the most interesting and amazing kids I have came across on this journey. And his mother shared his story in a way that made me laugh and cry. Read his story. You will fall in love. Aiden Aiden was diagnosed with Autism, severe ADHD, a sleep disorder, and OCD when he was four years old.  It was a long journey to that diagnosis and I somehow believed that once we had a confirmed diagnosis everything would…

Read More

Putting Your Mask On First

April 7, 2017

I’ve been having some minor medical stuff going on. Nothing huge but still slightly concerning. My fatigue and exhaustion were starting to affect my outlook on life and parenting so I broke down and went to the doctor. Of course it took me a while…like six months. I have no time for medical appointments when my son has so many of his own. You get it. I feel guilt about missing work so often already and then adding in another appointment. It’s just a lot. But like I said, my…

Read More

The Secret World of Autism

April 5, 2017

April is Autism Awareness Month. Prior to my son’s diagnosis, I never knew this month even existed. That’s how it typically goes I guess. People don’t pay attention until it’s their life. I get it. That was me pre-Autism. Now, my whole world is an Autism Awareness Month. I have a six-year old with nonverbal, severe Autism, and I invite you to take a peek inside our secret world. Autism can be scary, isolating, beautiful, humorous, amazing and sad. I, along with many other families, live in this world. Honestly, having…

Read More

When the Autism Super Mom Gets Depressed

March 28, 2017

There is a stigma around depression. A really, really ugly one. And I think there’s especially a stigma around mothers who have depression. If you’re depressed, you’re weak. Broken. You are medicated. You cry a lot. You sleep a lot. This isn’t true. At least not for me. I have a wonderful life. Two beautiful children. Three wild dogs. A wonderful and supportive partner. A beautiful home. I’m not weak. I am strong. I am freakishly independent. And I am not broken…at least not completely. I am not medicated. And on…

Read More

When Does Parenting An Autistic Child Get Easier?

March 24, 2017

Have you ever wondered that? I used to all the time. I would be at a particularly low point in our Autism journey and I would ask that question to my mom or a friend or a doctor. And no one would tell me the truth. I just needed to hear if it was going to get easier or get harder. I needed an honest answer. The problem was I was asking the wrong people. I’m not surprised I get asked this question every day by parents of newly diagnosed…

Read More

Gut Health and Autism

March 22, 2017

I shared a video on Facebook today about our first visit to a Naturopath. There was quit the response and 99% of it was positive. That’s a pretty great feeling. I am bringing my son to a Naturopath solely to work on his stomach complications. We have reach a dead end with traditional GI doctors. My son has not had an in-medicated poop in over 4 years. My kid is 6. That is messed up. I am hoping this Naturopath can work with us on diet modifications. I am hoping he…

Read More

Getting Medical Assistance (Medicaid) for your Disabled Child

March 20, 2017

The number one question I receive as an Autism mom is what benefits do I get for my son and how did I obtain them. Cooper receives Medical Assistance through the state. This is also known as Medicaid. I will gladly tell you what I know about the program. He also receives a few other services but I will save those for a different post. First, you need to find out what your state offers for benefits. Please understand that every state is different. Here is the link to the Federal…

Read More

My Journey As An Autism Mom-Video

March 16, 2017

There were two huge things I needed in the beginning of my Autism mom journey. I needed someone to tell me what to do and I needed someone to validate me. I kept seeking out a friend or a mom or a doctor that could understand what I was going through, validate how hard it was and tell me what direction to take. I never found it. There were times when I’d joke that I wasn’t qualified to make these huge, life changing decisions for another person. I wasn’t an…

Read More

What Autism Stole From Me As a Mother

March 16, 2017

I will openly admit that the hardest part of the Autism mom journey for me was missing out on milestones, typical parts of childhood development and overall special moments with my son. I dreamt of first words and teaching him to ride a bike and our first camping trip. I didn’t get most of them and if I did they were usually really upsetting for all of us. And at my lowest, saddest times, typically after an event like the first day of kindergarten or his birthday, I even felt…

Read More

Talking About Special Needs Parenting Guilt

March 14, 2017

I want to talk about Mommy Guilt. It’s a real thing. And on top of that I want to layer on Special Needs Parenting Guilt. The stakes are way higher. Every decision or lack of decision is huge. Should I try one more therapy? Should I visit one more doctor? How much is enough? I feel it every single day. And I want to let you in on a little secret…No one is harder on me than me. I love my kid more than anything and the worry that I’m…

Read More