Self care is EXTREMELY important. It’s the reason they tell you to put the oxygen mask on first and then give it to your kids. If you are not OK, you can not help others. Having a child with special needs is taxing, extremely taxing. In years past, I was not using self care at all. I didn’t believe in it. I didn’t think I deserved it. I thought it was selfish. I thought it was fluffy stuff. So, I ignored it and actually went the other way which was…
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Dear sweet son, If you tell me why you fill my bathtub with stuff I will buy you a car. Or a real, life size, train car. Or all the Cheetos you could ever want. In fact, you name your price. I’ll buy it. I just need to know why emptying a shower of soap, shampoo and conditioner and walking it over to the bathtub makes so much sense to you. I want to know who you place each item so meticulously. I want to know why you are happiest…
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Sometimes when I look at my son, it’s like he is not even there. The happy, sweet boy that we are learning to connect with is missing from behind his bright blue eyes. He’s completely lost. As a parent, trying to manage a meltdown from a child on the autism spectrum is incredibly difficult. But to actually experience that meltdown? I can’t even imagine. Wilson’s sensory reactions and how much his developing system can handle can be so unpredictable. His ability to understand and follow instructions has improved, but when…
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I had the honor of getting to know a family recently who has five adult children. The mother spoke in admiration as she told me that two of her son’s are doctors, one is a lawyer and one works in corporate finance. All four are married and have kids. And then there is Morgan. Their fifth. Their youngest. She is 27 and is autistic. She didn’t speak until she was five. She told me about the struggles early on. How she had to educate the schools. And navigate the system…
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Intellectual Disability. Severe. With language impairment. Non-verbal. Limited functional language. It was a mouthful. We weren’t to the end of the meeting yet. You know the part where you learn the diagnosis. We had just started on the 25 page document. I skipped ahead though and read the words. I wanted to know the results of his IQ test. I saw the number. Suddenly, I felt a ringing in my ears. The therapist was talking. I could see her lips moving. However, I could not quite hear her. I was…
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It’s the end of the school year and administrators are sitting with teachers working to create the best classes for the coming year. I understand it’s not an easy task. This year, I sit on the other side of the table as the parent who understands that my autistic child may be placed in your class. I have even heard that a few of my ‘friends’ have requested that their children not be in my child’s class. I want you to know, I understand. Really. I do. Friend, I remember…
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“I’m going to say something during the appointment” my husband said on the way to our daughter’s one-year pediatrician check up. “Why? It’s nothing. Seriously. Why even bring it up?” I said in a strong tone but really was begging him not to take our new, adorable, happy, drama-free family down a path I knew we were already on. Let’s go back one year prior to when our newest daughter was about to be born. We were holding our breath waiting to see her because after our anatomy scan at…
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Last night Cooper requested that I sit on the front porch with him. Which I gladly agreed too. It’s not often that my little Energizer Bunny asks me to sit with him. As he meticulously lined up his treasures around us he noticed the trucks and bulldozers that were working in the field behind our house. He immediately squealed in delight, pointed, and turned my cheek. He was in awe. And felt that I should be just as excited as he was. He climbed up on my lap and snuggled…
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My name is Amy and I live with my husband and son in Michigan. Our son Travis has severe autism with limited verbal ability. Travis is 11 and is very active! He is the center of the universe, and if you were unaware of this, he will use his super powers to convince you otherwise. Yesterday, we took him bowling. He was having so much fun. When he is excited and happy he squeals joyfully, and kind of side walks, very energetically. This is very typical behavior for him. It…
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Funny how in 2005, the word hope became the name of our beautiful baby girl. The simple 4-letter word was selected by my husband. He thought “we hope she sleeps,” after our first-born son loved to dance the night fandango and keep us up throughout his 18-month existence prior to his sister being born. Hope back then was based on the fact we were both working parents and how would we survive on very little sleep and get through our days? Four children later and the word dope has many…
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