Posts

Defying Expectations: Autism and Triumph

September 27, 2023

When my son was two years old his daycare provider told me that he would never speak, make a friend, or ride a bike. She later went on to say he would never hit a baseball. She told me at my car after I had buckled my son into his car seat and closed the door. She had followed me out. She was determined to tell me her predictions. In the ten years that have since passed I have replayed that conversation a million times in my head. It broke…

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Our Non-Speaking Child’s Future: A Letter to His Caregiver

September 26, 2023

“We should start planning for his future?” This is what my husband often says, but neither of us are sure where exactly to start. Should we set up a special needs account? Who will be in charge of his care? Where will he live? Who will explain to him what’s going on and how? I keep telling myself that we don’t need to think about this for a long time, but the reality is, we do. The fact of the matter is, something can happen to any of us tomorrow.…

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Autism and Brotherhood

September 25, 2023

I will never forget the day I found out I was pregnant with my second child. It was a surprise as they say. Our first born son Cooper had just turned one and terms like ‘speech delay’ and ‘development delay’ were already being discussed. When Sawyer was born 9 months later I was scared to say the least. A diagnosis of autism was being discussed. But it was more than that. I felt like a failure as a mom to my first born. How would I be able to give…

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Behind the Photo: Patience and Progress in the World of Autism

September 24, 2023

Pictures are funny. You can look at a seemingly ordinary one and think nothing of it. Like this photo. A mom. Two kids. An older boy. A younger girl. A baby doll. They appear to be at a place with model trains. What you don’t see is the hard work. The years of practice. The relentless journey of hope. The prayers. The picture doesn’t tell you that the older boy has a diagnosis of severe nonverbal autism. And for nearly all of his life going into the community was incredibly…

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Beyond the Struggle: A Plea to See the Person Behind the Autism

September 23, 2023

People ask me all the time how they can help. Kind people. Loving people. Strangers. Friends. Family. People on this page. I speak about that out of control feeling that happens when my son starts struggling. When his big feelings about waiting or sitting overwhelm him. Or when the noise is too much, and the lights are too bright, or he smells something in the air that you and I can’t make out. Maybe we are in line at the grocery store. Or at a hockey rink watching his younger…

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Kate Swenson In-Person Event at Anderson’s Bookshop

September 21, 2023

Join Anderson’s Bookshop for an in-person event and signing line with author Kate Swenson, to celebrate the release of Forever Boy, on Friday, October 6th at 7pm CT in our Naperville Store. Kate will be in conversation with insert conversation partner. After, they will take audience questions, have a signing line and take photos with attendees, if they wish! This event will be held in our Naperville store location (123 West Jefferson Ave), and pre-registration is required as space is limited.   REGISTER HERE: Author Event with Kate Swenson/Forever Boy | Eventcombo More about Forever Boy: With her popular…

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Rediscovering My Spark: More Than a Caregiver Respite Retreat at Moon Beach

September 20, 2023

I used to be a different person. Extroverted. Vibrant. People used to say that I bounced when I walked. I had dreams and goals. I knew who I was and what I wanted to have in my life. I knew what I enjoyed and had hobbies. I made time for myself. I laughed a lot, and loudly. I smiled a lot. I have worked in healthcare since high school. My job was everything to me. I lived for helping others and being there for them. I lived for the absolute…

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Dads Don’t Get Enough Credit

September 18, 2023

I often say that dads don’t get enough credit, especially in the special needs parenting world. My husband and I have four kids. 12, 10, 4, and 2. We are busy. That’s actually a wild understatement. We live in chaos. Sometimes we thrive. Sometimes we survive. We have schools and sports and horseback riding and miracle league and swimming and birthday parties. It never ends. It feels like a 5 person job most of the time. This past weekend I spent two glorious nights at a camp in the woods…

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Unlocking the World of My Nonspeaking Son

September 17, 2023

Before I had my son Cooper, I knew nothing of autism. Not really. And I can say with absolute certainty that I knew nothing about nonspeakers or nonverbal individuals. I’m sure I had ideas. And I’m sure they were wrong. My son is considered nonverbal on paper. And he has so much to tell us. At 12 years old he has 20 or so words. He has some sign language. He loves sounds and gestures. He can spell and read and type when he chooses too. He uses a speech…

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Prioritizing Quality of Life: A Reflection on Supporting My Autistic Son

September 13, 2023

This single concept of truly breaking down the components and supports for ensuring we honor the person’s quality of life may be the most impactful thing I’ve ever experienced. Quality of life focuses on a person’s strengths and interests, not their disability. The “QOL” or quality of life approach helps you learn to respect what a person wants, needs, and values in life… For the past two and a half years, our family has struggled with my son, Jackson’s, behavior, aggression, “epic meltdowns,” lack of compliance… I need him to…

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