A year ago in January I was going through, once again, some pretty brutal bullying online. I had written a post about jealousy in the special needs world. I had said that sometimes I get jealous of 8 year old boys with blonde hair and hazel eyes who can speak and ask questions and talk my year off about Star Wars. I said that I can be fine, feet planted fully in acceptance, invincible really, living in my special needs bubble…and then…out of nowhere, I’ll see the other side. Eight…
Read More
This story was shared with me by one of the women in my Supporter group. Grab a tissue. Just a little story from yesterday. I’m an Area Manager for a cleaning company and am always hiring. I had an interview yesterday with a young man named Ben. His Mom had called me before hand to tell me a little about him. He’s autistic and was nonverbal until age 12. He’s now 19 and she said she really didn’t want to waste my time but if I could just interview him…
Read More
Hope is a funny thing. It ebbs and flows. It even changes over the years. When I found out I was pregnant for the second time I hoped I wouldn’t miscarry. I hoped for a happy, healthy, ‘like every other kid I knew’, baby. I secretly hoped for a girl too. When I found out I was having a boy at 20 weeks, and that we would name him Cooper, I hoped for baseball games, camping, swimming, biking and fishing. I hoped for endless conversations and a beautiful family. I…
Read More
When you have a child diagnosed with something the words can be crushing. Maybe you found out in utero. Maybe at birth. Or maybe years in. Either way, whenever it happens, it can be very scary. You will feel like your world has been turned upside down. The control you once had as a person and a parent, now feels lost. What parents need as they move through the special need’s journey is support and hope. They need the professionals in their life to see all of the amazing…
Read More
Dear Mama, I know you’re probably feeling every single emotion flooding through your body right now… And I wish that I was there to wrap my arms around you and give you the big loving hug you so desperately need. I may not physically be there with you, but please know that I am here…along with an army of fierce mamas who have been exactly where you are. I’ve been on this journey for almost 9 years now and there are a few things I’ve learned along the way. Many…
Read More
It’s been a year. A whole year. My son, Tucker, and I just got back home from his open heart surgery. My daughter, Hazel, was in the throes of her worst regression to date. And my husband Sam, and I just decided to move to Texas for a new job; more or less on a whim. That was the day I found out that Hazel had been hurt. Sam left early from the hospital, we just couldn’t afford for him to stay in Rochester with us, and Hazel needed her…
Read More
Hi. My name is Carrie. I have five kids, and my second son is diagnosed with autism. His name is Jack. He is fifteen years old, and over six feet tall. As an autism mama, I am pretty used to advocating for the things we need, whether it’s an adjustment to his IEP, or a new kind of therapy, or a change in his medication. This has not always been easy for me. I have sat in many meetings, and through many appointments, with a bubble of rage in my…
Read More
If you’ve followed this page for any period of time, you know my son loves photos. Photos of Jamie and I when we were young. Party photos. Baby photos. Me as a freshman in college dressed up as a naughty nurse for Halloween. His dad taking a shot out of a beer bong made out of a plastic penguin named Petie. Our friends too. Old and new. He loves really happy photos. Carefree people. Letting loose. He hunts around the house for them. Digs in Rubbermaid tubs in the basement.…
Read More
Dear Autism Moms and Dads, We’re not so different, you and I. I imagine our days are filled with similar struggles, similar frustrations, similar fears. Sure, our kiddos might have different diagnosis or fall in different areas on the autism spectrum, but at the end of the day we can relate to one another more so than a lot of other parents can. With that being said, from one autism parent to another, I hope you can take this message to heart; never ever give up. You see, my husband…
Read More
Dear Co-Worker of a Typically Developing Child: I am writing this because I hope this helps someone. I hope this teaches empathy to at least one person. I hope another mom, another special needs mom, can be spared sitting in a work meeting holding back tears, while visibly shaking, after a coworker belittles and breaks down whatever piece of soul is left that day. Because some days – it’s not much. Life with Autism is different for everyone. For me – every morning is hell. My son is angry and…
Read More