Posts by Kate Swenson

The thing with growing tiny humans is they are always changing. Learning. Absorbing. Getting bigger. My son Cooper is 13 years old. He wants to ride an Amtrak train more than anything. He wants to have a party with his three friends, Dexter, Peyton, and Landon. He loves going to school. He also is autistic and technically nonspeaking on paper. But if you know him you know he has loads of words and sounds and signs and he can spell and read and even use movie scenes to tell us…

For me, as a mom, this parenting autism life, especially alongside my neurotypical children, has often like a contradiction. A double-edged sword or sorts. A constant contradiction of joy and grief, both coexisting and intertwined. Neither wrong. A few days ago, I walked into a gym full of fifth graders and their parents and teachers. A living wax museum it was called. And my son, Sawyer. He was Barack Obama. Or Barry as we learned he liked to be called. He was lined up amongst his peers. He was ready…

We practice. We practice everything. I remember in the beginning l, after the diagnosis of autism was said out loud, feeling overwhelmed about all of the things my son needed to learn. Things that came seemingly easy for most children. Walking safely, using silverware, speaking, playing, self care, I could go on and on. When I thought about all of it I almost couldn’t breathe at times. I didn’t know how to do it all. So, I did what any logical person would do…I made a list. I ranked them.…

When we are out in public, my biggest worries are not about how my autistic son will act. Instead I worry about how the world will react. I don’t worry about his mannerisms. Or his uniqueness. Because I know exactly who he is and how he is going to behave. And that he is learning and growing. I know he will flap his arms in pure joy. I know he will run. And sit. And maybe feel the cool of the cement with his cheek. I know he will squeal.…

I just came from a coffee date with a wonderful mother who has a daughter like my Cooper. The power of the internet brought us together. She wants to change the world like I do. She wants to take away the stigma and the fear and educate like I do too. Over coffee, we talked like old friends about our kids, our jobs, our goals, poop, behaviors, aggressions, medications, good schools, bad schools, the fear of puberty, self injuring…you know, all the things moms talk about when they find another…