I Wonder if You Will Always Need Me This Much

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My son,

I wonder if you will always reach for my hand when we are walking.

I wonder if you will always be precious and innocent.

I wonder if you will always gasp at birds and at squirrels.

I wonder if you will always point to airplanes. And wave to strangers. And bark when puppies walk by.

I wonder if you will always run up to a mud puddle with such joy and excitement and then look back to get my attention before you jump in.

I wonder if we will always dance and twirl and rest in the middle of tree covered paths.

I wonder if you will always pick up handfuls of sand and watch the grains fall through your fingers.

I wonder if you will always turn your ear into the wind, hearing things that I cannot.

I wonder if we will always mosey along at our own pace, oblivious to the world, like some old couple out for a stroll.

I wonder if you will always tell me when you get a bump a bruise and demand a kiss to make it better.

I wonder if you will always need me this much.

I do not know the answers sweet boy. I can’t predict the future.

I don’t know what our world looks like when you are 15 or 25 or 40.

Because Autism is woven into you, like the thread of a quilt. Beautiful. Intricate. Heavy. Colorful. Strong and tough. A complicated pattern of sorts.

I do know that some days I am so scared I can hardly breathe. And some nights, I lie awake trying to figure out how to keep you safe forever.

You are the most precious thing I have ever known. And I will surround you with love and support until my dying day.
I also know that in the beginning, I used to hold your hand so tight. And now, you hold mine. You lead. You let me know when you are fine on your own.

And I find myself reaching for you more and more. But you are busy.

You are dancing arms up to the sky. And I stand back and watch until you beckon me to join in.

And I wonder how I got to be so lucky.
Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook.
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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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