Little Big Things

kate 4

When I share my son’s autism, my favorite parts to share are the little big things.

The moments that happen that are so huge, yet so subtle, that sometimes I don’t realize they happened until hours later.

Like this morning. At 3 am. When I was awake with a toddler who refuses to develop a love for sleep like her mama.

My son Cooper is 11 years old. A tween. A soon to be sixth grader. He loves bullet trains, his grandparents, and episodes of Family Feud. He wants to go on an airplane. And he is autistic and nonspeaking.

The first time I heard the word autism I was in a meeting and the lady in the front of the room was talking about a disorder. I heard lack of eye contact. And refusal to play. She said a lot of things. All felt heavy.

I’ve learned over the last 11 years that autism cannot be summed up in a 30 minute presentation with checklists and bullet points.

It’s more. It’s complicated. Confusing. Beautiful. Breathtaking. Mysterious. It’s a sum of the parts. But never just one thing.

Last night, after therapeutic horseback riding, a program that allows my son to ride a horse, and flap his hands and use sign language to tell his horse to ‘walk on,’ something happened.

He told me thank you.

“Thank you for helping me.”

And, “I love you.”

Not with words though.

He touched my arm in the parking lot. Then my face. Which means…listen up mom. I’m going to show you something really important.

He smiled. Curiously. And pressed his finger to the screen of his iPad.

Dora’s voice filled the car.

‘Thank you for helping me! I love you!’

She was saying it to Boots, her monkey.

And Cooper was saying it to me, his mom.

He has never thanked me like that before. It was personal. It was real.

He played it a few more times just to make sure I heard.

Then giggled.

Horseback riding is a lot sometimes. But good. And when it’s over I look sweaty and a little exhausted.

I walk along with his horse while the other parents sit and watch. I hold his hand. I touch his chest reminding him to breathe. We count. And look at airplanes. And giggle when the horse poops.

I have to be on and engaged the whole time. Sometimes I feel like Boots the monkey.

See being someone’s person is a lot sometimes. Belonging to them.

But he saw that. For the first time. And he thanked me for helping him.

Little big things.

Because of autism I get to remember when my son thanked me for the first time.

And that is pretty amazing if you think about it.


Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. Follow us on FacebookInstagram, and join our supporter page, Coop’s Troops, for an amazing community full of support and understanding.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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2 Comments

  1. Ivan Carlo Jose on August 21, 2022 at 2:38 pm

    I love reading all your stories. They are all so relatable to me.



  2. Sand Seligman on November 10, 2022 at 11:36 pm

    Hi kate, My name is Sand Seligman and I am from Keene New Hampshire,i i just wrote you a summary introducing myself on your e post. I so look forward to ordering your,e books and learning about your,e amazing experiences and journeys raising your, e son Cooper with Autism.I am an adult in her 50,s whom is on the autism spectrum and lives independently with my cat, Your,e blogs and stories sound so inspiring and uplifting..I am excited to read your,e books and hopefully connect with you as an informative resource on autism.I would find your e stories enlightening and insightful to read.I would love a free trial only right now to your,e resources offered if that would be ok. Sincerely Sand Seligman.