We Will Figure it out Together

Cooper 30

My son,

Today was one of those days.

One where you seemed confused by the world. One where I didn’t know how to help. Or fix it.

Autism.

Woven into everything you do. Into the way you think and see and react.

Only I can’t see what you see. Or hear what you hear. Or feel what you feel.

Today I felt confused.

Much like any parent does I suppose. I know your brothers confuse me daily too.

But with you, the stakes feel a bit higher. The rules a bit more confusing.

Eleven years in and I like to say we both settled into autism.

You have your own beautiful ways of communicating. And sharing your color with the world.

You keep me on my toes. Ever changing. Ever amazing.

And I am your constant. Walking alongside you everywhere we go. Holding hands. Taking our time. Not allowing anyone to rush us.

Often communicating for you. Encouraging. Knowing that you are more. And demanding the world know the same.

You are you. And I am so proud of you Cooper.

But today. Today was hard. One of those afternoons that reminds me that autism touches so many parts of you. And always will.

I felt like a stranger peeking into your world. Expected to know what to do and say. But not understanding why. People looking to me to make it make sense. Only I couldn’t.

Why you react the way you do.
The silly. The impulsivity. The intensity.

We had some of the parts of disability that I don’t talk about very often.

After, when it was over, I felt exhausted.

You came to me with your speech device.

Three buttons were pressed.

I. Am. Sorry.

You looked at me. Eyes big. Cheeks still flushed.

I. Am. Sorry.
I. Am. Sorry.

The robot voice echoing.

And then that smile. The best one.

I felt sad. That the world is so confusing for you. And that as your mom, I don’t always understand.

‘I am sorry too buddy,’ I said.

I don’t always understand autism. I probably never will. And I am guessing my son will probably never fully understand this world either.

But together. We are figuring it out.

And that’s something.

A promise to figure it out together.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. Follow us on FacebookInstagram, and join our supporter page, Coop’s Troops, for an amazing community full of support and understanding.

 

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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