We Can’t Stop Talking About Autism

Cooper 15

What if we stopped talking about autism?

I think about that sometimes.

There will be times, like last night, where I will feel like it’s just too complicated.

Maybe, it would be easier to not share. To not advocate.

To hide even.

‘There was none of this autism stuff when I was younger!’

That’s a sentence I’ve heard more times than I can count from people. Some well meaning. Genuinely curious about it. And some, well, who think it’s a discipline issue. A bad child. A lazy parent.

The thing is…well, there were disabilities way back when. They were just hidden.

Little faces locked away in institutions. And if you want to argue about that, please, first, take a second and Google the ‘history of disabilities.’

Your skin will crawl. You will have to stop reading. Because it’s too awful. You will see the face of your own child. Naked. Medicated. Restrained.

I see my Cooper. And how he needs 5 warm fuzzy blankets to sleep at night. And loves bbq chips and going to school. And I think…thank God he is mine.

This morning I looked at my son dancing in his seat, so excited to go to school. Pure joy. His innocence. His vulnerability.

And I saw a kid with a full, meaningful life in front of him.

But also an uphill climb. One with sharing, advocating, and educating. One where I need to be brave and fearless.

One where he teaches us.

One where we show his gifts and his value in this world.

And his challenges too. Because once the world knows, and understands, and stops fearing, we can make tweaks and modifications to help kids like him.

We can’t stop talking about autism. We can’t.

He is not a sad story.
He is not a person to put somewhere. Or deal with.
His needs do not end at 18.
He needs to be in this world.

Start a conversation with your neighbor, a friend, a relative, the cashier at Target.

Because by sharing you are helping a fellow family.

I know you are beat down mom and dad, teacher, and self advocate. I feel it too.

But we can’t give up. We have to change the world for these kids.

And we can. And we will.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. Follow us on FacebookInstagram, and join our supporter page, Coop’s Troops, for an amazing community full of support and understanding.

 

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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