Car Rides and Autism

What are car rides like for your family?

For ours, I would say it’s the area where we have made the most improvement over the years.

Back when Cooper was just diagnosis and the word autism felt foreign on our tongues my husband and I referred to car rides H – E – Double Hockey Sticks.

We didn’t shine in the car.

Cooper was a screamer. And a thrower.

He would get upset if we turned the wrong way. Or stopped at a stop light.

We couldn’t get gas or go through drive thrus.

Sometimes Coops would get so upset he would rock the whole car back and forth. And we learned what self injuring was too.

My husband and I would often fight. And there would be yelling. And me climbing in the back seat to protect my misunderstood boy from hurting himself or others.

I used to wonder why seemingly simple things would be so hard for our family.

Autism and car rides didn’t work. They just were not safe. Or fun.

But we practiced. We rode around with a therapist. We took deep breaths and used timers and did everything we could to help our son, and family to be successful.

It took a lot of years.

I can say now that car rides are really no problem.

I mean besides the requests for snacks and pee breaks and ‘are we there yets?’

I talk a lot about the hard years. Because they weren’t just a little bit hard. They were ‘we can’t even ride in the car as a family’ hard.

And that’s hard.

Hang in there moms and dads. Keep practicing. It can get better.

Does your family struggle in the car?

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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