Comfortable With the Silence

When my son was 7 and 8 and the reality of nonspeaking forever was sinking in, I used to spend a lot of time thinking about his future.

What would it be like?

A teenager and then a man who couldn’t speak.

Would I ever know his favorite color?

Or why he loved trains so much?

Would I ever hear I Love You?

Would people be kind to him? Would they be patient with him and treat him with the respect that he deserved?

Would they know how cool he is? And funny? And smart?

And what would our relationship be like?

I would think about these things a lot.

In the shower and especially when I was driving in the car. Just me and him. I’d peer in the rear view mirror and study his face wondering what he was thinking.

I prayed a lot.

And hoped.

I bargained sometimes.

I cried too.

I willed myself to be comfortable with the silence.

And eventually…I was.

It didn’t happen overnight and it wasn’t an easy transition for me. Letting go. Of words. And silly questions. And conversations.

But time, well, it has a way of going on. And with it brings understanding.

A few nights ago, my son and I sat together for quite some time.

We chatted about the color of the water and the fish down deep.

We spoke about the upcoming weekend and how he wants to take an airplane ride.

We talked about the upcoming school year and how he is growing up before my eyes.

And how loved he is. I made sure he knew.

It’s funny ya know.

He never said a word. But we spoke for at least 20 minutes.

About his favorite color and his favorite trains.

I was really scared. For a long time.

Some days I still am.

But. It’s going to be okay.

He wants to live with Sawyer when he grows up. Definitely not Harbor.

He made me promise.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

Avatar photo

Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

Share this post: