The Other Side of the Table

Five years ago I became a teacher; five years ago I also became the mother to a son in heaven.

August 12th, 2016 I came home from my first new teacher work day. It was exhilarating, and exciting, and for the first time in a long time, I knew I was exactly where I should be.

I had no idea that a few short hours later I’d find myself in the hospital in preterm labor with our first child. That same day, we lost our son, Jaxon, at only 21 weeks.

I found myself wondering how on earth I was going to go back into that classroom and teach a room full of 28 kids, when I had just lost my own.

Nevertheless, I did it. Only 4 short days later.

And now looking back, I know that that choice completely changed my life.

I knew that was exactly where I was meant to be. 

Fast forward to April 2, 2017, I found myself in the same space. In preterm labor, this time with twin boys. That day, we lost our boys Everett and Bryant.

Again, nearly immediately after, I threw myself back into my work.

Now here we were, struggling with what to do next. We wanted to be parents more than anything and we knew we had so much love to give.

So in January 2018, after 7 long months of bedrest, we welcomed our angel on earth, Maddox. And we were smitten. 

Being a teacher is often a double edged sword.

You’re educated on child development just enough to be hyper critical of not only your work, but also the work within your own home, with your own kids.

Maddox was a spitfire from the day he was born. So independent, but so kind hearted and eager to explore the world.

I can tell you down to the minute, when I realized that something wasn’t right. 

I was sitting in the viewing area at his very first swim lesson. I had convinced my husband to get in the pool with him (more like I lost at rock, paper, scissors!), so I struck up a conversation with the mom sitting next to me. Her daughter was in Maddox’s class and we had discovered that they were only a few days apart.

Maddox nearly doubled her in size, but she had something Maddox didn’t; Eye contact, pointing, talking to her mom, waving, blowing kisses.

She had effortless interaction, and meaningful engagement.

There we sat behind the glass, her receiving waves and kisses, and me desperately trying to have Maddox even look at me. 

That’s when I knew. 

We are blessed with the most incredible pediatrician, turned family friend, and within minutes of this realization, I had sent her a text message. 

“I think Maddox has Autism.”

Although no one around me was on board at the time, they supported me, and they listened and I could never put into words how grateful I am for that. 

The following month, Maddox turned 18 months old. We had speech evaluations, occupational therapy evaluations, and physical therapy evaluations.

It was determined that my 18 month old was currently communicating at the level of a 3-6 month old. His repetition had also worried them to the point of needing weekly occupational therapy sessions, as well as speech. 

The next few months were a blur, I never stopped. I googled, I tried finding Facebook groups, anything I could do to find even a glimmer of hope.

And that’s where this journey of autism becomes lonely.

Before this, I had no idea how broad this spectrum truly is. No two journeys are the same, and there is no one-size-fits all description. 

This past winter, we had Maddox’s first preschool evaluation in order to have his IEP written.

Even through the diagnosis and the therapies, and the sleepless nights I spent worrying, this was the hardest for me. 

For the first time, I was on the other side of the table. 

I suddenly found myself trying to flip the switch from teacher, to mom.

I wasn’t advocating for accommodations for my students any more, I was doing it for my own child.

And although I had always had the greatest empathy for the parents of my IEP students, this was different. Now, we had something even greater in common.

In that moment, I came to understand them better than ever. I understood why they were so passionate, sometimes to a fault, about making their child’s educational experience the best it could possibly be. 

I can’t tell you how scary it is to send your 3 year old into a building with adults that you don’t know, and don’t know you. But I can tell you that it’s even scarier when they can’t talk to you about their day, and they can’t communicate with you in the same way that typically occurs at their age. 

Maddox’s diagnosis may have turned our world upside down, but now we fight every single day to turn the world right side up for him. 

And although I had grown used to being the teacher at that table, I was now fighting to become comfortable and aware of my new place, on the other side of the table. 

Written by, Jordan Lamping

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Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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