Why Autism Awareness Matters to Me

Why is Autism awareness important?

There are many reasons, but to me there is one that is most important.

I am the mom to a seven-year-old little boy who happens to be autistic.

Before my son, I had no idea what autism was. Sure… I had heard of it, here and there, but I couldn’t tell you what it meant. I wouldn’t have seen the signs in a stranger.

When my son’s autism was discovered, everything suddenly changed.

I began researching and learning everything I could.

The truth is you can read a lot about autism on the internet. You will find charts and studies and articles from doctors. The thing is…those aren’t the things that I used to understand autism.

I looked to the moms.

I read stories of moms who had been on their autism journeys long before me. I learned from their words and I asked a lot of questions.

The secret club of autism mamas.

They taught me everything I know.

I am about 4 years into my journey with autism and, while I am no expert, now I am one of those moms.

One of the moms sharing their stories to teach the world about my baby.

You see, now I understand why it is so important for the world to understand autism.

Why it’s important for the world to understand my boy.

My boy is loud. He squeals and yells and makes all the sounds, but he doesn’t speak.

Not in the traditional sense, anyway.

If you ask him a question, he probably won’t answer.

He flaps his arms and throws his body around.

He might hit or kick, but he isn’t trying to hurt you.

Without autism awareness, you might think he is weird.

Or bad.

Or scary.

Don’t think those things. They aren’t true.

He is just a boy trying his very best to live in a world that wasn’t built for him.  

Sometimes it feels like my son is frozen in time. His body will keep growing but, on the inside, he might always just be my baby.

I don’t say that in the sense of a mom wanting to keep her child little forever.

I mean developmentally, my son may never really be an adult.

He may still be a boy in a full grown man’s body.

He is defenseless, my guy, and it’s my job to protect him.

I protect him fiercely and with my whole heart, but I am not always going to be enough.

There is only one of me.

And a whole big world that he needs protecting from.

That is why Autism awareness is important to me.

It is important to me because, one day, I might need you.

I might need your help.

I try to be everywhere, all at once, but sometimes I’m not.

No matter how much I hate it, there are times that my boy is not with me.

There are times where I have to send my sweet, defenseless, perfect baby out into the world, and I just have to pray that he will be okay.

That’s where you come in.

That is why autism awareness is important.

To every single person reading this, I need you to remember what I say next.

The reason why autism awareness is so important is simple.

If there was a school shooter, my son wouldn’t hide.

If there was a fire, he wouldn’t run.

If someone took advantage of him, he couldn’t speak up.

If someone abused him, he wouldn’t fight back.

He is just a boy, even though he might not look like it one day.

And so I need you.

I need you to protect him when I can’t.

I need you to help him hide.

I need you to tell him to run.

I need you to speak up.

I need you to fight.

I need you to help me protect him, because I won’t always be able to do it.

I am just one mom, but there are thousands like me.

Thousands of moms who search their children’s bodies for bruises after school and panic every time they see a firetruck when they’re not with their baby.

We need you.

We need you to care about autism as much as we do.

Not just today, on Autism awareness day, but everyday.

Our children’s lives depend on it.

Written by, Maykayla Hazelton

Maykayla is a self declared “Hot Mess Mama” to her wild, loving, autistic little human. She sells yacht parties by day, plans weddings by night and navigates the world of special needs in between all of that. She is the co-creator of A Blonde, A Brunette and Autism where two mamas who went from internet strangers to real life besties share their journey of single parenting special needs kiddos. You can follow us on Facebook and Instagram.

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Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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