It’s My Story to Tell
Don’t tell me it’s not severe
When it’s MY story to tell.
Don’t tell me it’s not severe
When I daily live a version of hell
Don’t tell me it’s not severe
When all you got is something to sell
Don’t tell me it’s not severe
When there are holes where he fell
Don’t tell me it’s not severe
When the curve dips low on the Herrnstein bell
Maybe the word is harsh?
Or profound or extreme?
Critical or grave?
Or perhaps just plain mean?
Do those options please you?
Allow sleep at night?
Like sweet nectar on the tongue
That burns with delight
You can polish it up nice
Make it shine like brass
Ensure it’s real pretty
As translucent as glass
Like the neighboring house
We all know the one
With the rocks quickly buried
Beneath the setting sun
We each have our story
Some mild, some not
I speak for my truth
A belief that begot
A hope that spurs forth
Change and reform
Awareness and resources
For those out of the norm
Ignorance is not bliss
Hear me loud; hear me clear
To pretend everything’s fine
When autism CAN be severe
Written by, Jess Ronne
Jess Ronne is an author, speaker, podcast host, and caregiver advocate. She is founder and executive director of The Lucas Project—a non-profit dedicated to providing recognition, resources, and respite for special needs families. She and her husband Ryan live in Tennessee with their 8 children, including their son Lucas who has profound special needs. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga she can be found at www.jessplusthemess.com or www.thelucasproject.org
Interested in writing for Finding Cooper’s Voice? LEARN MORE
Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.
