Changing the Narrative

The other day I interviewed Joe of Joe James Autistic Awareness & Photography, an autism self advocate and all around cool guy. Each time I chat with him I spend days after reflecting on the wisdom and advice he provides me with.

In our most recent interview, at least a dozen time he said, ‘I am autistic and proud.’ And at one point he said, ‘can you imagine if every autistic person said that? How the narrative of disability would change?’

Wow. Think about that for a minute. Right now, disability is often synonymous with less than. Sad. Not valued. I know that rhetoric was sent my way after my son was diagnosed. And I succumbed for many years. The challenges overtook me. I’m not proud of it and I vow everyday to do better.

My goal is to change the stigma surrounding autism starting at the discovery. Even before.

When a parent hears autism I don’t want them to be quite so afraid. I want them to hear positive and hope not negative and bleak.

And that starts with me. As Cooper’s mom.

This is Cooper. He is autistic and I am so proud to be his mother.

Not despite the fact that he is autistic. His autism is woven through him and makes him who he is. Cooper.

He is the coolest, most amazing, funny, smart, kid. And I’m proud to be his mom.

As parents, we needs to say that more. We need to build confidence in our kids and hope in their futures.

Let’s share the beauty and joy in the diagnosis.

Also go give Joe a follow. We have lots to learn from him.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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