No Child Left Behind

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It is November and the first progress reports have been sent home and parent-teacher conferences have happened.

My son Caleb is adjusting well to 5 days a week of Pre-K. His speech has improved, we are using sentences with 3-4 words and answering some ‘yes and no’ questions without prompts.

I am definitely seeing the growth from last year.

His teachers and I both agree that we have to continue working on independence. He sticks to them like glue and gets jealous of the younger kids.

At home, he sticks to me like glue, and before you ask “yes, he is still in my bed!!” Which is a story for another day!

Somehow, I’ve blinked and we went from 0 to kindergarten!

I can feel literally feel Kindergarten breathing down my neck. And it smells like large classes, less support and both mama and baby crying every morning.

Maybe I’m wrong, right?

After all, we have 7 more months, and the progress we’ve made in the last 7 months has been astounding.

With that being said, I really need to start working on preparation for kindergarten.

Caleb’s current elementary school is all about inclusion and their kindergarten class is an integrated class. This means Caleb will be in class with other 5-6 year old without disabilities or delays.

The thought of this has led me down the dark tunnel I have worked long and hard to avoid…the comparison tunnel.

The space where I am looking at other children Caleb’s age and comparing what they can do and what he hasn’t started doing yet.

I’ve started stressing over his delay in writing, will his new teachers understand his language, is he ready for an integrated class, will we have to consider an alternative school, will he be ready to do homework.

Holy crap! I hear there is so much homework!

What if his little buddies are ready for kindergarten? Will they move on and leave him “behind”?

To combat my anxiety, I’d already gone out and purchased kindergarten prep workbooks. We’ve spent an hour so working together on them but it ends in frustration and whining and fighting.

I’ve also purchased the same pencils they use at school and ABA, I’ve emailed his caseworker at ABA and asked to make handwriting a priority in his programs, sight words have been printed and placed on the walls in the house and then right before I made a call to see if I should enroll him for additional occupational therapy I gave myself a reality check.

But not before blaming myself for not doing this sooner, because let’s face it…Mom Guilt takes no days off.

What am I doing?!? And who are you doing this for?

Is this for Caleb or is this for me? For my pride? My ego maybe?

Where is the gratitude for the progress?

Do I remember where we were 7 months ago and now, I’m in a panic about 7 months into the future?

This is after all the definition of ASD.

There are delays. He learns differently. He isn’t like everyone else. And that’s ok….

I thought I’d made peace with this. Or had I only accepted it when he was with other kids who were like him?

These are the questions I had to stop and ask myself because with my personality there is a slippery slope between preparation and panic.

Preparation, planning and patience is what Caleb needs to thrive.

Panic and pity parties don’t serve either of us and just make for wasted time.

I knew how to advocate, research and be a voice for Caleb. His teachers actually made note of that in our meeting.

She said “I’m not worried about Caleb getting what he needs next year, he has an advocate. YOU! And I will also make sure he has what he needs from my end.”

Why couldn’t we just stay in Miss Molly’s happy world forever and ever?

Somehow, I’d let this thought of “being left behind” creep in and I have no idea where it even came from.

This was Kindergarten and although there was work to be done…there was always work to be done.

That was lesson #1 when this bomb dropped down on us.

There will always be work to do and that should be the focus.

Our work, our journey, our path which will always look slightly different than anyone else’s.

Kindergarten will be different and maybe 1st grade too.

Middle school will be another transition and High School for sure.

There will probably be a handful of other transitions in between, maybe new schools, definitely new teachers, and absolutely new friends.

The consistency will always need to be ME and the advocacy for what’s best for Caleb, therefore there is no time for panic…only preparation.

There will be no child left behind because there is no race.

Written by, Tiffany Hutchinson

My name is Tiffany and I am a single mama to 4 year old son Caleb Ashton who is awesomely autistic. We live in Tampa, Florida and we share our journey on our blog  https://amamabearandhercub.com  with the hope to inspire and encourage other families in the African American community, where autism still doesn’t get spoken about as often as it should. You can also follow us on Instagram at https://www.instagram.com/amamabearandhercub.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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