November 27, 2018

Evolving as a Special Needs Parent

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When my son was first diagnosed with autism I struggled to even say it out loud. I felt awful saying the words, ‘my son has autism.’ When I said them, I felt like I was betraying him. Or making it real.

Then, once I was ready to talk about it, I quite literally had no one to talk with.

None of the other parents in my group had autistic children. They would be talking about sports and education while my life was therapy, doctors and sleep deprivation. I realized quickly that autism makes people uncomfortable. They can’t relate. They don’t know what to say.

And to be honest, I didn’t always know what to say either.

Now, almost eight years in, Jamie and I have so much more confidence. We are comfortable talking about autism in every day conversations. We are matter of fact about our bizarre, different life. We’ve evolved. We don’t hide it.

Take a listen to two instances where I spoke about my son’s diagnosis that made people uncomfortable. And honestly, I’m so proud that we are where we are today. It took years to get here.

It feels good.

https://www.facebook.com/findingcoopersvoice/videos/344668016087344/

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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1 Comments

  1. Lisa Rogalla on November 28, 2018 at 7:18 am

    Please see books and works by the Author Temple Grandin, she suffered fought and won with Autism, please check her out she runs clinics for Autism, take him to a riding school this is particularly importent for Autism and Aspergers. Give him lemon barely and oats to reduce Cortisol levels, also if your a caregiver and you are burnt out drink at least two pints of lemon barely daily to combat fatigue. Contact me on my email if you feel the need.
    Peace love and light Lisa.