Riding the Roller Coaster

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Look at this smile. He’s back.

We made it through another regression. Another loss of skills and spike in behaviors. This one lasted nearly two months. Which in our autism world is actually short.

I don’t know what caused it. Maybe getting a new sibling. Maybe the ear infection he had. Or a full moon, new therapist, or change of season. I’ll most likely never know.

That’s our autism world. A mystery. It’s constant ups and downs. Gaining skills. Losing skills.

I call it a roller coaster. But we made it through another one.

And looking back, it’s good to see our track record of making it through is a 100%.

Today, we have more laughter and less screaming.

More smiles and less protesting.

More communication and less self injuring.

More sitting and less running.
Less isolating. Less hoarding. Less anxiety.

He is calmer. Our home is calmer. Our family is feeling it.

I could tell you that Cooper’s autistic behaviors don’t affect every aspect of our lives. But I’d be lying. We just hold on and ride it out. And right as we get pushed to the brink…it gets better.

We are on another upswing. We made it. Now we hold on and pray it keeps going.

We made it through another one.

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Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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