Archive for August 2018
I Want Greeting Card
Last night when Cooper got home from school, he immediately ransacked his bag. He pulled everything out. Then grabbed his speech device and said…’I want greeting card.’ I had absolutely no idea what he was talking about. As he got more frustrated, I got more confused. Then this morning I get a text from his amazing therapist…’Did Cooper give dad the birthday card he made?!’ And then sent these photos. I seriously almost fell out of my chair. First, my kid is a genius and amazing. Second, he used his…
Read MoreI Thought I Knew About Autism
I was heartbroken when my son was diagnosed with autism. You want to know why? Because of what I thought I knew about it. I had an idea in my head of what autism was. And boy was I wrong. There were a lot of things I didn’t know. The main thing was, I thought that people with autism couldn’t show affection. Or didn’t want to. I thought it was hard for everyone on the spectrum to make connections with others. The minute that the doctor told me that Carter…
Read MoreResidential Treatment Made us Stronger
In May, Margaret shared the agonizing decision her family made to place their son William in residential treatment. He was admitted on March 13th. Two hours away from their home. They knew he may be there for six months or more. Margaret gave us a glimpse inside her world. A world that many parents don’t understand. “It was unfathomable just a mere year or so ago that I would ever consider “sending my son away” for treatment. He’d be with people we didn’t know. We wouldn’t know what was happening…
Read MoreMy Son, His Sister’s Protector
As my children grow, I have watched their sibling relationship start to evolve and take shape. Some days I sit back and observe them, in awe, amazed at what a perfect match they are. Other days I am playing referee and constantly breaking up arguments. I know arguments are a part of any relationship in life and siblings are no different. My children are complete opposites, and honestly I wouldn’t have it any other way. My son Daniel, who is 22 months old, is your typical almost two-year-old boy. He…
Read MoreBecoming Brothers
We have two boys – just 15 months apart. Usually when I tell someone this, I get comments like how lucky – they will be BEST friends. Do they get along? Do they fight a lot? I bet they keep you busy. Well, the last of these statements is certainly true but the others – I never thought it was possible but I think maybe we’re getting there. They are now 12 and 10. Our younger son has pretty severe/ nonverbal autism and his big brother is as “typical” as…
Read MoreWe Take Nothing for Granted in our World
Last night, my five-year-old graduated from preschool. It was a super big deal in our world. He wore a cap and gown. He practiced a song for weeks in the car, the shower and before bed. His grandparents came to the ceremony. He stood in front with the other kids and got his diploma. Jamie and I sat and watched. My baby boy. Achieving milestones. Growing up. Now, we prepare for Kindergarten. We will set a day for school shopping. We will pick out his backpack and supplies. We will…
Read MoreThe Resilience of a Sibling
I’ve always wanted to be a mom. For as long as I could remember, I’ve dreamt of having kids of my own and having a big family. When my husband and I got pregnant not too long after getting married, we were ecstatic. We found out we were having a boy! My husband, being the sports enthusiast that he is, was thrilled as well. We dreamed of everything we would do with him, all the things typical boys would love. Dawson was born and he was perfect. When he was…
Read MoreLiving With Self-Injurious Behaviors
One thing I’ve learned as the mother to an autistic child, is that when your child has self-injurious behaviors, you’ll never be able to describe the feeling accurately. I’ve also learned that if a person doesn’t know what you’re going through, you’ll never be heard accurately. Any time that I have thought I might open up and share the fear, frustration, sorrow and deep gut wrenching pain, I’ve learned that unless a person has lived it as a parent or caregiver, they can never understand. Sometimes you get even worse,…
Read MoreStop Worrying and Enjoy Your Child
Yesterday, there was a beautiful noise at our house. One that seemed out of place. One that we rarely hear. One that for years was hard to produce. It was the deep, loud, silly, belly laugh of Cooper playing in a pool with his brother and his brother’s friends. He was in there for three hours total. He was one of the kids. I have never seen a happier child. Or heard a better laugh. We are talking pure joy. As I watched him play, I was overcome with emotion.…
Read MoreI Am A Cerebral Palsy Dad
Some of my favorite stories involve the relationships between fathers and sons. I lost my own father when I was 15 to lung cancer. My dad was my best friend. Don’t get me wrong, he could be a very difficult man. He was very old school. I would not be surprised to learn that he was probably bi-polar. He did not have the greatest upbringing. But it is funny. Although he was old school, unlike a lot of father’s from the baby boomer generation, he was very affectionate. Not a…
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