Ear Infections, A CT Scan, and Autism
My Super Cooper had some rough ear pain last night. It was the first time in his life he has ever cried out screaming and crying. My kid is tough. Jamie and I practically levitated out of our chairs at the intensity of his screams. When your kid is nonverbal you start to understand cries and noises. This was real. For a brief second I was scared to look in his room. By the sound of his screams I couldn’t really imagine what had happened. He was laying in bed shaking. When we asked him what was wrong he repeatedly beat his right ear with his fist.
Seeing your child beat their head in pain is the most difficult thing I have ever seen.
The frustrating part…Cooper had his ears checked on Friday and they were clear. This tells us the infection is in his bone and can be common in recurring ear infections. This would explain why ear drop antibiotics just seems to lessen the pain for a short while but never clear it up. On the scale of surgeries, fixing a bone infection in the ear cavity is a big one. Sigh. One step at a time though.
Thankfully, he has a sedated CT Scan on Tuesday morning at Children Hospital. Right now we are keeping him comfortable and spoiling him rotten. On Friday he requested his compression tie dye shirt and hasn’t taken it off yet. It seems to be the only thing helping him control his stress. I LOVE THIS SHIRT. (Link Below)
Kids shouldn’t have to be in pain.
In this video I give an update on where we are at with a few things. Specifically, Cooper’s ears and upcoming CT Scan. I also touch on behaviors and emotions. My two favorite topics. Just know this is a sad video. I often talk about the emotional roller coaster that special needs parents ride. There are highs and lows and it often feels like we get no time in between. I am in a low right now. Fighting to get my son healthy has hit me pretty hard.
Also, I want him to speak so badly. I don’t say that very often. I am supposed to say that I am OK with it. That I am happy he can communicate non-verbally and with his speech device. But, and there is always a but, the sadness over him not speaking is hitting our family hard right now. Again. It’s not fair. It’s hard. And it’s sad. That’s the truth.
https://youtu.be/20jcuxqYmBI
Link for Tye Dye shirt from Fun and Function: http://shrsl.com/sfij
Link for Train Blanket: https://www.amazon.com/gp/
Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook and subscribe to our newsletter.
