Seeing Your Words on a Computer Screen

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I wrote a post a few weeks ago about depression. I didn’t really share it around. I kept it kinda private. It’s very hard to be honest in real life about depression. Even today as I read my repost on Breaking the Parenting Mold I struggle to believe I really wrote those words.

They are pretty raw. And vulnerable. I am almost embarrassed by them. And worried that people are going to judge me.

But, sigh, they are the truth. And I worry about sharing them.

Here is the post: The Stigma of Being s Special Needs Mom with Depression

Grief is a very large part of my life. I spend much of my day managing grief. Pretending it’s not real. Accepting it. Justifying it. Burying it deep down inside.

I had a pretty great conversation the other day about ‘choosing joy‘ above all things. Waking up and deciding to be happy. I want to do that every single day. I strive for that my friends.

This week I am doing great. Last week was pretty good too. Cooper is healthy. The appointments are down. We survived conferences and therapy and his last round with the GI doctor. We survived a broken kindle and Halloween. He is sleeping in until 6 am these days. He is eating. He is giving more and more hugs these days.

Today I am OK.

But the depression is always there. Brewing under the surface. I can feel it at all times. It’s a weight on my back.

As I drove into work today I was chuckling thinking about my two sons trick-or-treating last night. They were each a riot in their own way. And I will tell Cooper’s Halloween story here when I have time.It’s pretty great.

My mind started to wander as I thought about winter approaching. And Cooper’s birthday. He is going to be 6.

Cooper’s birthday is a very low time for me. He is a December baby. Add in two holidays and the stress of autism and expectations and you have the perfect combination of parent depression.

December is bad for me.

Age 6 and no words. I will start repeating it and analyzing it. I’ll do it for miles while driving. I remember thinking that at age 2, 3, 4 and 5 that soon he would be talking. Everybody talks. Everybody speaks.

What does 6 and nonverbal look like? What does 10 look like? And I’ll keep going. A teenage and nonverbal. A man and nonverbal.

It will cycle through his life. Flashes and glimpses of his future. Until I put a stop to it. And fight to stop thinking about sad things.

Today I am OK.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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2 Comments

  1. larva225 on November 4, 2016 at 4:51 pm

    I loved what you did with Halloween (saw on IG). That was marvelous. You are doing a fantastic job!



    • Avatar photo findingcoopersvoice on November 4, 2016 at 7:06 pm

      Thank you! It actually went ok!